Comments for Everyday Life With MS http://everydaylifewithms.wordpress.com Experience Tips Real Life Solutions Thu, 23 Apr 2009 23:46:43 +0000 http://wordpress.com/ hourly 1 Comment on PLEASE HELP – VOTE TRINITY by does being a vegan consume your everyday life? | Lifes Like... http://everydaylifewithms.wordpress.com/2009/04/23/please-help-vote-trinity/#comment-33 does being a vegan consume your everyday life? | Lifes Like... Thu, 23 Apr 2009 23:46:43 +0000 http://everydaylifewithms.wordpress.com/?p=32#comment-33 [...] PLEASE HELP - VOTE TRINITY « Everyday Life With MS [...] [...] PLEASE HELP – VOTE TRINITY « Everyday Life With MS [...]

]]> Comment on Are Meds The Majority Of My Problems? by elle0568 http://everydaylifewithms.wordpress.com/2008/08/27/are-meds-the-majority-of-my-problems/#comment-32 elle0568 Fri, 10 Apr 2009 00:58:32 +0000 http://everydaylifewithms.wordpress.com/?p=25#comment-32 Hi there! I had a really bad experience with Rebif. I felt sick all the time. The side effects of Rebif were worse than MS. I went off Rebif but started relapsing. I am now in the process of starting Beta Seron...we'll see. I think that treating the symptoms of MS is a lot of trial and error! You've got to find what works well for you. I haven't found my magic bullet yet! Best of luck to you and your treatment. Hi there!

I had a really bad experience with Rebif. I felt sick all the time. The side effects of Rebif were worse than MS. I went off Rebif but started relapsing. I am now in the process of starting Beta Seron…we’ll see. I think that treating the symptoms of MS is a lot of trial and error! You’ve got to find what works well for you. I haven’t found my magic bullet yet! Best of luck to you and your treatment.

]]> Comment on Are Meds The Majority Of My Problems? by sabrina http://everydaylifewithms.wordpress.com/2008/08/27/are-meds-the-majority-of-my-problems/#comment-31 sabrina Thu, 09 Apr 2009 17:33:36 +0000 http://everydaylifewithms.wordpress.com/?p=25#comment-31 Did you decide to stop the rebif? I am currently taking rebif (have been for over a year) and considering stopping. i do not have problems sleeping but frequently have headaches and body aches that keep me from doing things I enjoy. I also have brain fog. I wonder too if it the meds are really worth it. Did you decide to stop the rebif? I am currently taking rebif (have been for over a year) and considering stopping. i do not have problems sleeping but frequently have headaches and body aches that keep me from doing things I enjoy. I also have brain fog. I wonder too if it the meds are really worth it.

]]> Comment on About My Life With MS by elle0568 http://everydaylifewithms.wordpress.com/about/#comment-30 elle0568 Wed, 03 Dec 2008 09:42:40 +0000 #comment-30 Hi Tracy - Thank you so much for your comment. I am not the same person I once was. I recently went off all meds and I am in that honeymoon period waiting for the other shoe to drop. I feel really good...but how long will it last. Creating a network of support is the best medicine out there along with taking care of ourselves. xo Lora Hi Tracy – Thank you so much for your comment. I am not the same person I once was. I recently went off all meds and I am in that honeymoon period waiting for the other shoe to drop. I feel really good…but how long will it last. Creating a network of support is the best medicine out there along with taking care of ourselves.
xo
Lora

]]> Comment on About My Life With MS by Tracy http://everydaylifewithms.wordpress.com/about/#comment-29 Tracy Tue, 02 Dec 2008 04:18:21 +0000 #comment-29 Thank you so much for your page. I am at that terrifying place of being misdiagnosed 7 years ago and completly fine until a year and a half ago. I just quit my career, turned in my bmw, downsized to a single apt. The person I have worked so hard to be is gone. I went off all meds and went with a holistic approach. I did AMAZING for 4 months, then got hit again. Feels like there is no where to turn but I am becoming convinced it is diet and prayer (meditation). There is a way! I will follow you. Thank you so much for inspiring me. Your friend. ~ Tracy Thank you so much for your page. I am at that terrifying place of being misdiagnosed 7 years ago and completly fine until a year and a half ago. I just quit my career, turned in my bmw, downsized to a single apt. The person I have worked so hard to be is gone. I went off all meds and went with a holistic approach. I did AMAZING for 4 months, then got hit again. Feels like there is no where to turn but I am becoming convinced it is diet and prayer (meditation). There is a way! I will follow you. Thank you so much for inspiring me. Your friend. ~ Tracy

]]> Comment on Are Meds The Majority Of My Problems? by Meander http://everydaylifewithms.wordpress.com/2008/08/27/are-meds-the-majority-of-my-problems/#comment-28 Meander Mon, 01 Sep 2008 01:22:47 +0000 http://everydaylifewithms.wordpress.com/?p=25#comment-28 I am not currently taking anything for my MS but rebif was my first choice. Thanks for sharing your experience. I will come back to read more of you. http://www.healthcentral.com/multiple-sclerosis/c/73302/profile I am not currently taking anything for my MS but rebif was my first choice. Thanks for sharing your experience. I will come back to read more of you.

http://www.healthcentral.com/multiple-sclerosis/c/73302/profile

]]> Comment on Trouble Breathing by InsockyGoanny http://everydaylifewithms.wordpress.com/2008/07/10/trouble-breathing/#comment-21 InsockyGoanny Sun, 03 Aug 2008 17:24:48 +0000 http://everydaylifewithms.wordpress.com/?p=21#comment-21 Thank you Thank you

]]> Comment on Life Is Hard Enough Without Help From Your Pharmacy by elle0568 http://everydaylifewithms.wordpress.com/2008/07/08/life-is-hard-enough-without-help-from-your-pharmacy/#comment-20 elle0568 Thu, 10 Jul 2008 14:11:45 +0000 http://everydaylifewithms.wordpress.com/?p=20#comment-20 I was hoping I was the oddball who experienced this problem with Caremark. Did you have any adverse reactions to their mistake? I am just beside myself with what has been happening to me. I am having a hard time getting my body back on track. I was doing so well until this...now it's setting me back work-wise, financially and with my family. UGH! I am just amazed at how they try to blame the doctors in these situations. I have been going to a highly respected neurologist for the past 3 years and their office is very conscientious. I've NEVER had an issue with their office. I find it very hard to believe they would make such a major mistake. They know how difficult it is to deal with this illness and they know my case very well. Funny how similar our stories are! I wonder how many more are out there like ours! I was hoping I was the oddball who experienced this problem with Caremark. Did you have any adverse reactions to their mistake?

I am just beside myself with what has been happening to me. I am having a hard time getting my body back on track. I was doing so well until this…now it’s setting me back work-wise, financially and with my family. UGH!

I am just amazed at how they try to blame the doctors in these situations. I have been going to a highly respected neurologist for the past 3 years and their office is very conscientious. I’ve NEVER had an issue with their office. I find it very hard to believe they would make such a major mistake. They know how difficult it is to deal with this illness and they know my case very well.

Funny how similar our stories are! I wonder how many more are out there like ours!

]]> Comment on Life Is Hard Enough Without Help From Your Pharmacy by slippingthroughmyfingers http://everydaylifewithms.wordpress.com/2008/07/08/life-is-hard-enough-without-help-from-your-pharmacy/#comment-19 slippingthroughmyfingers Thu, 10 Jul 2008 13:56:07 +0000 http://everydaylifewithms.wordpress.com/?p=20#comment-19 I forgot...yes, it was Caremark. I forgot…yes, it was Caremark.

]]> Comment on Life Is Hard Enough Without Help From Your Pharmacy by slippingthroughmyfingers http://everydaylifewithms.wordpress.com/2008/07/08/life-is-hard-enough-without-help-from-your-pharmacy/#comment-18 slippingthroughmyfingers Thu, 10 Jul 2008 13:55:43 +0000 http://everydaylifewithms.wordpress.com/?p=20#comment-18 OMG!!! I had almost the exact same expeienc....except I went without my Rebif for three weeks! The last week beore I finaly got my orderI called twice per day. They blamed i on my docor. I spoke with his nurse adn the day they asked for the prescription, they faxed it. I know this is true because they have taken care of me for three years dn have been ultra on the ball. Plus I go to a MS center for goodness sake! OMG!!! I had almost the exact same expeienc….except I went without my Rebif for three weeks! The last week beore I finaly got my orderI called twice per day. They blamed i on my docor. I spoke with his nurse adn the day they asked for the prescription, they faxed it. I know this is true because they have taken care of me for three years dn have been ultra on the ball. Plus I go to a MS center for goodness sake!

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