Everyday Life With MS

Experience Tips Real Life Solutions

Life Is Hard Enough Without Help From Your Pharmacy


Ok, I’ve been having a hard time for about the last year.  I’ve tried everything from diets to holistic healing.  I started feeling better about two months ago until my mail order pharmacy was acquired.

I’ve been on Rebif Since October 2007.  Pharmacare my mail order pharmacy took great care of me ensuring I had my meds when I needed them until they were acquired by Caremark (CVS).  That’s when things took a turn for the worse!

Caremark called and insisted that I have my Neurologist fax over my prescription so they could fill it.  I was running very low on my prescription.  As a matter of fact, I only had two injections left and I was messing around with prescription faxes and requests – a lot of red tape when all I really needed was to take care of my health.  Caremark was more interested in their paperwork!

My Doctor’s office complied with their request and faxed the only prescription written for me regarding Rebif.  The prescription was dated October 2007 and instructed a titration pack for two weeks followed by a maintenance dosage.  The date this transpired was May 2008.

Caremark sent a titration pack to me.  I was desparate for my meds so I began taking it.  I never checked the box/dosage since I had been on maintenance since October 2007 – 7 months ago – I was operating on Auto Pilot.  Plus…Pharmacare had always taken such good care of me.

I started feeling really sick.  My symptoms got worse, I had major hot flashes, couldn’t sleep, had severe aches and pains in my muscles, bones and joints and fatigue like you wouldn’t believe (above and beyond the normal MS fatigue which is hard enough to deal with on it’s own).  Anyway, you get the picture.

By chance, a nurse from Sereno called to conduct her routine check-in.  She is great!  She always gives me some great tips to help ease any side effects I may be feeling.  While we were talking, she had me check my box of Rebif which is when we discovered I was taking titration doses. 

Yikes!  When we discovered the error, she put herself into action and got me a new box of Rebif immediately. 

When speaking with the folks at Caremark, I got a half hearted apology and the excuse of “The person who made the mistake is only human”.  Well, excuse me but I am only human too and her “mistake” has cost me 6 weeks of my life, extreme pain, fatigue and loss of time with my 7 year old daughter – something that can never be replaced.  And guess what?  I am still not over her mistake.  I haven’t completely adjusted to the correct dosage of Rebif.

Any of you who know what it’s like to adjust to the maintenance dose of Rebif knows what I am going through.  Lucky me, I got to do it twice!

Anyway, I really wanted to know what Caremark was going to do to make sure this didn’t happen to anyone else.  To date, I haven’t gotten an answer.  I also wanted the executives as Caremark to know what has happened but I have only been able to speak to “supervisors”.

I did report the mishap to the FDA but still, I want to know what Caremark will do in the future.  This is a serious problem and should be dealt with swiftly…hah!  Accountability today is a joke!

Has anyone had this experience with Caremark or any other pharmacy?

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July 8, 2008 - Posted by | Pharmaceutical Therapies | , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , ,

3 Comments »

  1. OMG!!! I had almost the exact same expeienc….except I went without my Rebif for three weeks! The last week beore I finaly got my orderI called twice per day. They blamed i on my docor. I spoke with his nurse adn the day they asked for the prescription, they faxed it. I know this is true because they have taken care of me for three years dn have been ultra on the ball. Plus I go to a MS center for goodness sake!

    Comment by slippingthroughmyfingers | July 10, 2008 | Reply

  2. I forgot…yes, it was Caremark.

    Comment by slippingthroughmyfingers | July 10, 2008 | Reply

  3. I was hoping I was the oddball who experienced this problem with Caremark. Did you have any adverse reactions to their mistake?

    I am just beside myself with what has been happening to me. I am having a hard time getting my body back on track. I was doing so well until this…now it’s setting me back work-wise, financially and with my family. UGH!

    I am just amazed at how they try to blame the doctors in these situations. I have been going to a highly respected neurologist for the past 3 years and their office is very conscientious. I’ve NEVER had an issue with their office. I find it very hard to believe they would make such a major mistake. They know how difficult it is to deal with this illness and they know my case very well.

    Funny how similar our stories are! I wonder how many more are out there like ours!

    Comment by elle0568 | July 10, 2008 | Reply


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