Everyday Life With MS

Experience Tips Real Life Solutions

Have You Ever Wondered How To Talk To Someone with MS?


I came across a blog entitled “AnonyMS“.

The first article I saw was entitled “How to Talk to Someone with MS”.  For lack of a better response…OMG, finally!  Thank you for writing this article and putting this issue into perspective.

Please read the article here.  If MS or any other circumstance for that matter,  is a part of your life, this article will give great insight, reminding all of us that the disease does not define who we are.  Being a wife, mother, sister, friend, co-worker, artist, author, performer, contributor to society  and the many other roles we play defines who we are as a person.

AnonyMS makes a great point when she says “Sure, it’s helpful to have an MS mentor–and chances are, your MS’er has already reached out to someone…”  Many friends and family members may be offended if they are not the person the MSer reached out to.

Having MS is very personal.  You are no longer in control of what your body does.  Some of the things your body does just doesn’t make for good dinner conversation and is uncomfortable to talk about.

Think of it this way…You would never expect a sexual assault survivor to discuss every last detail of their ordeal with you and how they are dealing with it and the treatment options they have selected or not selected to help them cope.  You should never expect the same of someone who has been diagnosed with MS.

Yes, you are a close friend or family member to this person but you are not living the battle they are fighting.  For someone with MS, it is easier to reach out to a total stranger, a blog, or a support group.  Even though no one experiences the same symptoms, they all experience and know The MonSter intimately.

Let your friend/family member bond with their new family found in MS.  If they want to reach out to you, they will, but on their own terms and their own timetable, just like a survivor of sexual assault would.

Your job, be their friend and family member they new before MS, not their counselor.  Talk to them just as you did before The MonSter started to reside within them.

May 5, 2010 Posted by | Everyday Life, multiple sclerosis | , , , , , , , , , , , , , , , , | 1 Comment

Forks Over Knives…


Are you ready to reverse and/or prevent disease? Check this out http://ping.fm/BqqIT

May 4, 2010 Posted by | Diet, Everyday Life, multiple sclerosis | , , , , , , , , | Leave a comment

Are Meds The Majority Of My Problems?


It’s almost 3am and I can’t sleep…again.  I was woken from a sound sleep with muscle and joint pain.  Last night was an injection night.  As I wait for the pain to subside, i am wondering…are my meds worth it? 

I take rebif three times a week.  I have low energy levels, brain fog, and confusion.  I think it’s due to lack of sleep.  Would my body be healthier if I went off Rebif?  It would certainly rest when it’s suppose to.  I wonder, am I doing more harm right now?

I am still working on my diet.  It’s so hard.  I must cut out everything I love.  I believe it’s working though.  The last few days have been good days…I’ve almost felt…do I say it?  Normal!

What are your thoughts when it comes to the therapies you’re on?  Let me know.

xo

Lora

August 27, 2008 Posted by | Everyday Life, Pharmaceutical Therapies | , , , , , , , , , , , | 3 Comments

I’m Back – embarking on a NEW journey


I have been really struggling lately – fighting so many symptoms but mostly fatigue.  It’s an effort to do almost anything.  I am totally convinced that diet has so much to do with it.  As I wrote in earlier posts, I was attempting to follow a gluten-free diet.  Easier said than done.  At first I was really good and did well with it.  I began to feel better but then slipped into bad habits.

On Friday, I found the book “Healing Multiple Sclerosis   Diet, Detox, & Nutritional Makeover for Total Recovery” by Ann Boroch.  So much of what she wrote in her book made sense.  After reading her book I took a close hard look at my diet and realized what a disaster it was.  Loaded with sugar and processed foods it’s amazing my body is functioning at all. 

Our grocery stores are jam packed and jelly tight with fatal foods.  It’s no wonder that not only are we obese but are children are following right in our footsteps!  As a nation we have adopted such an unhealthy lifestyle and we are passing it down the generations. 

All of the recommendations in Ann Boroch’s book were amazing.  I have comitted to eating the right way for my body.  I am staying away from sugars, processed flours, red meats and porks.  That means my diet will consist of mostly chicken, fish, vegetables, fruit – but not a lot of fruit as it is a form of sugar and whole grains. 

Today I tried a new grain…Quinoa.  I’ve heard about it but never tried it.  This grain is awesome and has a nutty flavor.  I love nuts so this will end up being a staple in my home now. 

I expect that the first two weeks will be difficult as I detox my body and get rid of the sugar and caffeine.  I love my coffee but I love living life more so the sacrifice will be worth it!

I will keep you updated as I go along on this journey to better health.

xo

Lora

August 24, 2008 Posted by | Uncategorized | , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , | Leave a comment

Swank, Paleo, Bible Diet?


Hello!

I’ve been doing my own version of the SwaPalible diet.  Yes, a combination of the three.  Really, what they all boil down to is eating nothing processed.  Eat whole foods and eat natural.  If you can’t pick it or grow it – don’t eat it.

I repeat to myself on a daily basis – garbage in – garbage out.  If I feed myself garbage, I can expect my body to become garbage. 

Prior to my relapse in July, I followed this diet pretty closely – eating nothing but whole foods.  I felt wonderful.  Then, I got lazy.  I paid for it.  Now, I am working at eating only what’s good for me.  If it improves the quality of my life, I need to embrace it.

xo

Lora

April 23, 2008 Posted by | Uncategorized | , , , , , , , , , , | 2 Comments

   

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