Everyday Life With MS

Experience Tips Real Life Solutions

Everyday Life – Everyone Wants to Help


Hello! 

I have been diagnosed with MS since 2005.  I had almost 2 years of life symptom free!  I felt good and accomplished a lot. 

Almost everyone who knew me, knew that I had MS.  I didn’t keep it a secret.  I wanted people to know and to see how well I could manage life.  Even though you couldn’t tell I had MS by looking at me people still treated me like I had a disability.  I could never say or do enough to let them know that I was OK and life was good.  I wanted the times that I was symptom free to be times when I didn’t have to think any more about the disease other than taking my nightly injection.

Now that I have been relapsing people hover around me.  Wanting to do for me.  No matter how strongly I tell them that I can do it on my own or I will call/ask for help when I need it.  If you know someone who has MS and they tell you they will let you know when they need your help, please respect that.  MS can be debilitating enough on it’s own, it doesn’t need help from others enabling it to be even more debilitating. 

I think one of the things I struggle with most when I am relapsing is the loss of freedom.  There are times when I cannot get out of bed, drive, walk, run, see, think or even care about participating in life.  Since MS can interfere with my life on those levels, I don’t want anyone else helping MS in making my life more debilatating than it can be. 

I once heard a motivational speaker talk about her life with MS.  She was a truly amazing woman.  One of the things she said that has always stuck with me is that one prerequisite of being diagnosed with MS is that you have to have a good dose of stubbornness to go along with it.  I am so stubborn when it comes to what I can’t do.  I will always push the envelope.  I will not allow it to rule my life but I will recognize when I need to slow down.

I started to give up my positive attitude and element of hope not too long ago.  That was totally out of character for me.  My close friends were there supporting me all the way, encouraging me to go after life with the same zest, only differently.  Shift paradigms.  Take what you have today and do the best you can with it even if it means staying in bed all day.  Just don’t give up.  You are here, on this earth, to make a difference and it can be done, no matter what your struggles are.

Keep strong

&

Stay hopeful

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March 25, 2008 Posted by | Everyday Life | , , , , , , | Leave a comment

Today is a NEW Day!


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From now on lets approach every day as a new day.  One that is filled with:

  • Hope
  • Happiness
  • Fulfillment
  • Fun
  • Enjoying what we have at the time
  • Not concentrating on our issues

Those are some of the hardest things to accomplish when you are dealing with some pretty heavy symptoms or issues relating to your MS.  Sometimes it’s just easy to have a pity party, but that’s exhausting too.  Live and do what you can today.  Make the most of the day and your family. 

Many times MS upsets our plans for the future…or so we think.  You may have been clicking along on a mission or plan to accomplish something when MS stepped in and changed everything.  That happend to me.  I was on one path and MS led me to another.  My life is completely different from what it used to be.  I can’t say that it’s better or worse, just different.  I am still getting used to the changes. 

Changes are good because they offer so many areas of opportunity.  You just need to be creative.  Think outside the box and then put it into action.

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Think in terms of:

  • What did I always want to do/learn but never had the time because of my busy life before MS?  If you had to slow down your life because of MS it’s hard to discover what it is you should be doing to be productive.
  • How can I make a difference in my life or someone elses?  Could you be a resource for someone?  An advocate?
  • What hobbies or interests do you have?  Expand on them.

Tell me what it is your struggling with and let’s come up with a plan for you. 

Remember, change is GOOD!

March 22, 2008 Posted by | Raising a Family | , , , , , , , , , | Leave a comment

   

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