Everyday Life With MS

Experience Tips Real Life Solutions

15 Ways to Fight MS Fatigue


Hello everyone!

This article on fatigue is short and to the point.  If gives some great suggestions on how to combat fatigue.  Please add any strategies you use in the comment section below!

Thanks!

xo

Lora

15 Ways To Fight Multiple Sclerosis Fatigue

By rcgroth on April 22, 2009 | From conquerms.com

 

Multiple Sclerosis Fatigue is one of the number one symptoms and complaints of multiple sclerosis. And unfortunately one of the #1 reasons that many people with MS end up on disability.  Multiple Sclerosis fatigue is real, and a prominent symptom for as many as 85-95% of those with MS.

Here are 15 ways to fight against fatigue.  Just the little things that you do each and every day can make a difference.

1.   Be aware of medication side effects.  Anti-depressants are well known to have a side effect of fatigue. Talk with your doctor and determine what side effects each medication your on has.

2.   Drink a sufficient amount of water:  Dehydration can cause fatigue and many people with MS don’t like to drink water because they suffer from an over active bladder.- I’m guilty of this one.  Our bodies need water for energy and to remove toxins, so don’t scrimp on this one.

3.   Improper breathing:  Shallow, short breathes will reduce the amount of oxygen coming to your cells, therefore making you feel fatigued.

4.   Not exercising:  Ok, so you’ve heard this one a number of times on how exercise increases energy.  There’s no excuses regardless of what level you are at with your MS.  Bed Top exercise, chair exercise, and standing up –we’ve got you covered at You Can Do It.

5.   Depression:  Not accepting multiple sclerosis, being depressed about your current life will cause depression and the by product fatigue. Using techniques to change your mental outlook and your thinking such as “Theatre of the Mind”. Will allow you to relive all the good things that happened to you in the past and therefore remove depression out of your life.

6.  Too much heat:  Heat increases your disabilities and fatigue and just makes you feel bad. Anytime out in warm weather I can go from walking normally to barely walking at all.  Stay out of the heat, use a cooling vest, and look for activities that keep you cool like swimming.

7.  Avoid Simple Carbohydrates:  White bread, white pasta, and sugar slow you down and fatigue you.  Keep up on a diet of whole foods consisting of fruits and veggies.

8.  Vary Routine:   Toss up your normal daily schedule.  Each one of us needs some variety each day.Plan something for the future that you can look forward to.

9.   Experiment with aromatherapyPeppermint and jasmine essentials oils are known to be energizing.  Put a few drops on your collar of your shirt to smell during the day, or take the container of peppermint with you and take a sniff when your feeling fatigued.

10. Go to bed at the same time every night Most people don’t get enough sleep, and leg spasticity may be keeping you up at night.  

11. Reduce your weight:  Being overweight will make you feel fatigued.  Watch what you’re eating and exercise to maintain a healthy weight.

12. Not Pacing, Planning, or Prioritizing Your Life:  It’s important to have balance in your life. It’s important to balance fatigue and rest.  Devise a plan on what needs to be done and organize your tasks so that they are manageable.

13. Eating Breakfast Everyday:  When you first wake up your blood sugar is low, eating a proper breakfast is an energy booster.  Skipping breakfast drains your energy contributing to fatigue. 

14. Check out your iron levels:  If you’re not getting enough iron that you may feel fatigued.  Eat fish, eggs, fortified cereals, and beans to fight against multiple sclerosis fatigue.

15. Last but not least:  Fatigue is a symptom of MS and you should not feel bad when asking for help.  Spend your energy on what matters and determine what you can ask others for in helping you conserve your valuable resources.

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January 30, 2012 Posted by | Everyday Life, Fatigue, Symptoms | , , , , , , , , , | Leave a comment

Marbles For MS


The following website is a must visit/must read for anyone who has MS or anyone who knows someone with MS.

http://www.marblesforms.org

Thank you Connor for your creativity and dedication to helping those with MS

xo

Lora

August 5, 2011 Posted by | Everyday Life, multiple sclerosis | , , , , , | Leave a comment

Have You Ever Wondered How To Talk To Someone with MS?


I came across a blog entitled “AnonyMS“.

The first article I saw was entitled “How to Talk to Someone with MS”.  For lack of a better response…OMG, finally!  Thank you for writing this article and putting this issue into perspective.

Please read the article here.  If MS or any other circumstance for that matter,  is a part of your life, this article will give great insight, reminding all of us that the disease does not define who we are.  Being a wife, mother, sister, friend, co-worker, artist, author, performer, contributor to society  and the many other roles we play defines who we are as a person.

AnonyMS makes a great point when she says “Sure, it’s helpful to have an MS mentor–and chances are, your MS’er has already reached out to someone…”  Many friends and family members may be offended if they are not the person the MSer reached out to.

Having MS is very personal.  You are no longer in control of what your body does.  Some of the things your body does just doesn’t make for good dinner conversation and is uncomfortable to talk about.

Think of it this way…You would never expect a sexual assault survivor to discuss every last detail of their ordeal with you and how they are dealing with it and the treatment options they have selected or not selected to help them cope.  You should never expect the same of someone who has been diagnosed with MS.

Yes, you are a close friend or family member to this person but you are not living the battle they are fighting.  For someone with MS, it is easier to reach out to a total stranger, a blog, or a support group.  Even though no one experiences the same symptoms, they all experience and know The MonSter intimately.

Let your friend/family member bond with their new family found in MS.  If they want to reach out to you, they will, but on their own terms and their own timetable, just like a survivor of sexual assault would.

Your job, be their friend and family member they new before MS, not their counselor.  Talk to them just as you did before The MonSter started to reside within them.

May 5, 2010 Posted by | Everyday Life, multiple sclerosis | , , , , , , , , , , , , , , , , | 1 Comment

Forks Over Knives…


Are you ready to reverse and/or prevent disease? Check this out http://ping.fm/BqqIT

May 4, 2010 Posted by | Diet, Everyday Life, multiple sclerosis | , , , , , , , , | Leave a comment

Tell Your Story Here


I want to know what your MS story is.

  • Are you someone with MS?
  • Tell me your diagnosis story
  • How do you cope?
  • What is your advice to others with MS?
  • Are you a caregiver? – What’s it like being a caregiver and how do you cope?
  • Is your parent someone who has MS?  How does that make you feel?
  • How do you cope with your parent having MS?
  • Are you a volunteer?  How do you help those with MS?

Tell me what it is you experience with MS, how you cope and what you can offer for advice.

I can’t wait to read what you have to say.

May 1, 2010 Posted by | Everyday Life, multiple sclerosis | , , , , , , , , , , , , , | 3 Comments

World Multiple Sclerosis Day


World Multiple Sclerosis Day is May 26, 2010.  Learn More Here:  worldmsday.blogspot.com

April 29, 2010 Posted by | Everyday Life, multiple sclerosis | , , , , , , , | 1 Comment

To Understand it You Have To Live It


Take a moment to live inside my body. It goes beyond the every day trials people may face such as being tired after a long day at work, getting the flu, not understanding a math problem or even spraining an ankle. Those trials have a beginning, a middle and an end. My MonSter is here to stay, living inside of me, decaying my body until the day I leave this earth.

Once there to experience your moment within my MonSter, you will experience:

A fatigue like no other

The constant poking of pins and needles growing to a crescendo of stabbing daggers and swords

Complete weakness – the inability to move, to help yourself to the bathroom or a glass of water when you so desperately need it

Confusion. Something you used to do with ease and perfection is now a struggle and riddled with error

Total isolation

When I am lucky enough to have a good day, I can be fun, happy, active, alert, and make total sense. Demands grow, people forget about the MonSter lurking, and waiting to time it’s next attack. The MonSter attack plan is a shrewd one. Taking liberty to attack at the most inopportune times – completely corrupting the peace that had settled in its place since the last attack.

The MonSter is never fair, understanding or selfless.

The MonSter is always selfish, spoiled, demanding, and hurtful.

If you know someone with MS, try to understand the battle and warfare taking place within their body. Understand their good days will not last forever and for that reason, make their good days all the more sweeter because the bad are just around the corner.

If you have MS and are not being heard, or don’t quite know how to explain what is going on, let me be your words. Share this with those who need to live in the battlefield of MS, just for a moment.

xo L

April 29, 2010 Posted by | Everyday Life, Fatigue, multiple sclerosis | , , , , , , , , , | 2 Comments

Are Meds The Majority Of My Problems?


It’s almost 3am and I can’t sleep…again.  I was woken from a sound sleep with muscle and joint pain.  Last night was an injection night.  As I wait for the pain to subside, i am wondering…are my meds worth it? 

I take rebif three times a week.  I have low energy levels, brain fog, and confusion.  I think it’s due to lack of sleep.  Would my body be healthier if I went off Rebif?  It would certainly rest when it’s suppose to.  I wonder, am I doing more harm right now?

I am still working on my diet.  It’s so hard.  I must cut out everything I love.  I believe it’s working though.  The last few days have been good days…I’ve almost felt…do I say it?  Normal!

What are your thoughts when it comes to the therapies you’re on?  Let me know.

xo

Lora

August 27, 2008 Posted by | Everyday Life, Pharmaceutical Therapies | , , , , , , , , , , , | 3 Comments

I’m Back – embarking on a NEW journey


I have been really struggling lately – fighting so many symptoms but mostly fatigue.  It’s an effort to do almost anything.  I am totally convinced that diet has so much to do with it.  As I wrote in earlier posts, I was attempting to follow a gluten-free diet.  Easier said than done.  At first I was really good and did well with it.  I began to feel better but then slipped into bad habits.

On Friday, I found the book “Healing Multiple Sclerosis   Diet, Detox, & Nutritional Makeover for Total Recovery” by Ann Boroch.  So much of what she wrote in her book made sense.  After reading her book I took a close hard look at my diet and realized what a disaster it was.  Loaded with sugar and processed foods it’s amazing my body is functioning at all. 

Our grocery stores are jam packed and jelly tight with fatal foods.  It’s no wonder that not only are we obese but are children are following right in our footsteps!  As a nation we have adopted such an unhealthy lifestyle and we are passing it down the generations. 

All of the recommendations in Ann Boroch’s book were amazing.  I have comitted to eating the right way for my body.  I am staying away from sugars, processed flours, red meats and porks.  That means my diet will consist of mostly chicken, fish, vegetables, fruit – but not a lot of fruit as it is a form of sugar and whole grains. 

Today I tried a new grain…Quinoa.  I’ve heard about it but never tried it.  This grain is awesome and has a nutty flavor.  I love nuts so this will end up being a staple in my home now. 

I expect that the first two weeks will be difficult as I detox my body and get rid of the sugar and caffeine.  I love my coffee but I love living life more so the sacrifice will be worth it!

I will keep you updated as I go along on this journey to better health.

xo

Lora

August 24, 2008 Posted by | Uncategorized | , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , | Leave a comment

Trouble Breathing


Hello –

Still recovering from the drug mishap courtesy of Caremark.  New developments include trouble breathing.   Has this happened to anyone else before?  Let me know.  I’m not sure if it’s a drug issue or an MS symptom.  Thoughts and comments welcome!

July 10, 2008 Posted by | Pharmaceutical Therapies, Symptoms | , , , , , , , , , , , , , , , , , | 1 Comment

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