Everyday Life With MS

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I Am Desparate for Feed Back


Hello All!
I am going crazy trying to figure out what is going on with me.

I recently changed neurologists because I wasn’t getting anywhere with my old neuro. The new Dr. ran lots of blood tests and ordered new MRIs.

Yesterday I had a consult with him and he told me my MRI hasn’t changed since my last one 3 years ago. He told me my symptoms do not correlate with my MRI and as a matter of fact, my MRI isn’t characteristic with MS.

He also tested me for other things like lupus, lyme disease, etc. but everything came back normal.

He told me that my symptoms are psycho-somatic, basically not real and that I have a deeper issue than the symptoms.

I am stunned. Has anyone else gone through this before? Is it possible for me to have symptoms but all tests come back negative?

As I write this, I am fatigued, some of my fingers don’t work like they should and I have tingling all down my right side.

Advice on where to turn now would be soooooo helpful.

Thanks
xo
Lora

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June 30, 2010 Posted by | Everyday Life, Fatigue, multiple sclerosis, Relapses, Symptoms | , , , , , , , , , , , , , , | 4 Comments

Relapsing


Tingling, tremors and brain fog!  Oh my!

That’s been life these past 3 days including the usual loss of balance, blind spots and falling asleep standing up!  Yikes!

I started a three day course of solu-medrol and finished it today.  It’s my third treatment in six months.  I haven’t really seen a huge improvement with this treatment – ever.  I still have the symptoms that originated 6 months ago plus some more.  Has anyone else had this experience with solu-medrol?

For me, solu-medrol is a sedative.  I fall asleep during my treatments and I am really lethargic the rest of the day.  I also get the metallic taste and for me it lasts and lasts as well as nausea. 

If this treatment doesn’t solve anything in the next month or so, my Neurologist is going to put me on a clinical trial.  I will let you know what it is when I find out and tell you if it’s something worth checking out.

In the mean time, let me know which treatments have worked for you.

Stay positive,

Lora

March 21, 2008 Posted by | Pharmaceutical Therapies, Relapses, Symptoms | , , , , , , , , | Leave a comment

   

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