Everyday Life With MS

Experience Tips Real Life Solutions

Tell Your Story Here


I want to know what your MS story is.

  • Are you someone with MS?
  • Tell me your diagnosis story
  • How do you cope?
  • What is your advice to others with MS?
  • Are you a caregiver? – What’s it like being a caregiver and how do you cope?
  • Is your parent someone who has MS?  How does that make you feel?
  • How do you cope with your parent having MS?
  • Are you a volunteer?  How do you help those with MS?

Tell me what it is you experience with MS, how you cope and what you can offer for advice.

I can’t wait to read what you have to say.

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May 1, 2010 Posted by | Everyday Life, multiple sclerosis | , , , , , , , , , , , , , | 3 Comments

Relapsing


Tingling, tremors and brain fog!  Oh my!

That’s been life these past 3 days including the usual loss of balance, blind spots and falling asleep standing up!  Yikes!

I started a three day course of solu-medrol and finished it today.  It’s my third treatment in six months.  I haven’t really seen a huge improvement with this treatment – ever.  I still have the symptoms that originated 6 months ago plus some more.  Has anyone else had this experience with solu-medrol?

For me, solu-medrol is a sedative.  I fall asleep during my treatments and I am really lethargic the rest of the day.  I also get the metallic taste and for me it lasts and lasts as well as nausea. 

If this treatment doesn’t solve anything in the next month or so, my Neurologist is going to put me on a clinical trial.  I will let you know what it is when I find out and tell you if it’s something worth checking out.

In the mean time, let me know which treatments have worked for you.

Stay positive,

Lora

March 21, 2008 Posted by | Pharmaceutical Therapies, Relapses, Symptoms | , , , , , , , , | Leave a comment

   

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